“People kill for hair this color.”
Every time I get my haircut, the stylist remarks about it. But I
haven't always been comfortable with my appearance because white hair
and pale skin have meant people have stared at me my whole life.
It's hard to remember a time when I didn't feel like I was on
display. As a child, I remember this unwarranted gawking bothering
my mother quite a bit. We'd be out at the mall, at the movies or
maybe out to eat and her face would tighten into a scowl, “They're
staring at you,” she'd hiss, remarking about a group of people I,
in most instances, didn't even notice.
Sometime in eighth grade I started to
say, “If people are going to stare at me, I at least want to
control why they stare.” I figured if I dyed my hair a shocking
color, people would stare because of a choice I made about my
appearance and not because of a mathematically improbable genetic
shortcoming; so, I dyed my hair blue using food coloring. I thought
this was taking ownership. Unfortunately, school administration
wasn't on board with my self-expression. I was called into the
office even though, Eleanor, a really popular girl whose hair was
dyed in really cool sparkly streaks, was never in trouble for her
hairstyle. The Vice Principal was named Mr. Lynch and he was a
short, fat bald man with a mustache and an ego as fragile as those of
the pubescent pupils he patrolled. He said my dyed hair was
disturbing classes, but he was probably just jealous I had any hair
to dye. My mom was called in from work and, according to her, she
yelled at Mr. Lynch but I was still sent home, which was a much
easier way to make sure nobody stared at me. I wanted to believe “If
people are going to stare at me, I at least want to control why they
stare” was my philosophy, but the truth is I just wanted to fit in.
I wanted people who were ballsy and cool to think of me that way. I
hoped dyeing my hair would gain me a social group and someday, just
maybe, the affection of a woman. I'd love to tell you getting sent
home from school solidified my reputation as a dangerous rebel, got
Eleanor's attention and we became fast friends who fell in love, but
the truth is I was a ghost with acne and poor hygiene and Eleanor and
I never even spoke to one another.
Freshman year of high school I
couldn't figure out how to take care of myself because I couldn't
figure out who I thought I was supposed to be. I'd expected to play
football but when the doctors wouldn't let me because of my eyesight (See Fun with Balls and Sticks),
the dickhead jock persona I probably would've cultivated was out the
window and I had to find a different identity entirely. As a result,
Freshmen year was basically a return to seventh grade levels of
depression and an abandonment of all self-care. I grew my hair long,
I didn't bathe, wash my clothes regularly or care about my
appearance. I hated myself too much to even overcompensate for the
fact I hated myself. One day two Persian girls with really hairy
necks came up to me in the hallway and told me I needed to wear
deodorant because I stunk. I tried to dye my hair red and it turned
out peach. By sophomore year I was bathing because I liked a girl
but I got way into punk rock so nobody stopped staring; though, now
they stared because I had a green mohawk or a shaved head and a
bomber jacket with patches for bands they'd never heard of. They
probably stared because they thought I was a neo-nazi. My Junior
year, I was a fairly well groomed weirdo musician and people stared
at me all the time, but it was partially because my closest friends
were two really good-looking twin brothers, a guy who resembled a
handsome Quentin Tarantino, a guy who looked exactly like John
Travolta on steroids and my best friend was a dead ringer for Timothy
McVeigh, the man who blew up the Oklahoma City Federal Building in
1995.
Besides my albinism and friends, there
are 100 other reasons people might have stared. Until I was 18, I
was also morbidly obese. On July 27, 1997, a month away from
starting Senior Year of high school, I was just under six feet tall
and I weighed 290 pounds. Over the course of the next year, thanks
to cultivating some discipline related to what I shoved in my mouth
and late night jog sessions every single night regardless of weather,
by July 27, 1998, a month away from starting college, I was just
under six feet tall and weighed 190 pounds. Losing a small person
and keeping most of it off has been one of the hardest things I've ever done
and you know what's frustrating about it? I've now been in shape so
long many of my friends from back then don't even remember that I
lost 100 pounds in 12 months 18 years ago.
Because I went to college in Boston
and then transferred to UVA, many of the people around me were from
wealthy families; as such, they dressed really well. I also had some
kinda superficial, Seinfeldian friends, so I started to take a real
interest in my appearance. I wore jeans and a black t-shirt nearly
all the time to try and look dangerous, except when I'd dress up to
go out drinking. Now that I wore a 36 waist, I could shop at Lord &
Taylor or J Crew. I took care of my face, shaving with a
multi-bladed razor, nice shave cream and using an aftershave balm
with no alcohol so as not to damage my skin. I became quite vain.
By the end of college, my friend Lexi would describe me saying, “I
mean, you have albinism. But if people can get over that, you're
really hot.” But I couldn't 'get over that' because people still
stared at me all the time. While I now recognize maybe people were
staring at me in college because they liked what they saw, at no
point did I feel good about their prowling eyes because at no point
did I like the man staring back at me in the mirror.
A misunderstanding of Bret Easton
Ellis' fiction, led me to a period during which I really cared about
clothes. In my 20s, I became a brand whore, only wearing Diesel
jeans or other designer labels. I cared about some guy's name in my
shoes or how much my watch cost. My value was reflected in what my
sweater was made of or that people knew I had cool socks. I told
myself a new version of the same old lie as I overpaid for haircuts.
“If people are going to stare at me, I at least want them to like
what they see.” Staring down and seeing “Hugo Boss” written on
the inside of my coat momentarily made me hate myself less after
someone called me “Grandpa,” “Frosty the Snowman” or remarked
about “Powder.” Sure, I didn't know my value or values, in any
sense of the word, but at least I knew my jacket was expensive. I
could always tell you the total cost of everything I was wearing,
right down to the Calvin Klein boxer briefs. A designer wardrobe was
my costume. Diesel jeans, Cole Haan shoes and a Gucci sweater were
the disguise I wore to convince myself and everybody else I was no
longer that scared, stinky freshmen who hated himself so much he
couldn't even bring himself to bathe. I'd come to like myself just
enough to overcompensate for how much I hated myself.
When I started riding my bike around
Los Angeles instead of driving, (See Driver/ Driver) I became far
less concerned about wearing designer clothes because anything I wore
ended up drenched in sweat. Biking also demanded I focus on the
world around me in ways I hadn't before. It didn't matter how much
my underwear cost as I pedaled and swerved around BMWs on Melrose trying not to die. My actions mattered in a whole new way and having
to stay focused on real world obstacles forced me to get out of my
head. I also dropped 20 more pounds.
It took 30 years for me to have an ass
small enough to fit into a pair of Levi's jeans, but they looked
great. And you know what? My cheap new jeans didn't matter. In
fact, I got more attention in the Levi's than I ever got in Diesel
jeans. Turned out nobody really noticed what I wore. Then my
apartment got robbed and my nice watches were stolen. I used my cell
phone to tell time and nobody noticed that either. I came to
realize, nobody had noticed any of it. Nobody but me cared who made
my clothes, nobody but me obsessed over my watch or my socks or my
undershirt or that I used shaving balm without alcohol or put white
strips on my teeth. Like a Bret Easton Ellis novel, most of the
people I was trying to impress were too self-absorbed to notice
anyone else's choices. And worse, I was too self-absorbed to notice
they weren't noticing. It was eighth grade all over again: I wanted
people to think I was cool, but nobody was paying attention. Even
when they stared, nobody saw me.
Or maybe my friends just saw through my
costume to a version of me that I couldn't see yet.
By paying more attention to my
actions, words and deeds than the costume I'm wearing, I found a way
to be more comfortable in my own skin. Today, I don't care about
brands but I do take pride in my appearance. I remain very aware of
how I dress because, while clothes aren't as important as I thought,
costume still matters. Like anyone, my appearance and the effort I
put into it send cues which inform other people how I treat myself
and thus, how they ought to treat me. Three years ago, I started
wearing a tie and jacket when I lecture. I was instantly taken more
seriously by students at the colleges where I teach and by the staff
members at the Chipotles near those colleges. Nobody really stares
at me if I dress well now, they just treat me with respect. Because
of my white hair, I think I just look like every other well put
together middle-aged doofus. The anonymity is mostly liberating. And
if I ever want to feel completely on display, I can always dye my
hair or stop bathing.
Further Reading: Albinism and Aging: A Case Study by the Numbers
Further Reading: Albinism and Aging: A Case Study by the Numbers
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